Outside Perspective

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Sometimes I don’t notice changes in myself. They come on gradually. I don’t think of them until someone mentions it.

People have been telling me for awhile that I seem less anxious. I have been able to give presentations, start conversations, some things that might not seem like much but have been hard for me in the past. I even took part in a podcast once.

I was telling my therapist that I have had trouble with some physical things like fingerprinting (for work) or mammograms where they have to position you. I get tense and the more I am told to relax the worse it gets. Today. I had a mammogram. i warned the woman that I have had trouble in the past, but 1, 2 3 she was able to easily take the pictures.

I also told my therapist I have these brief periods when I feel at peace, happy out of the blue. She thinks I am finally starting to come out of a depression. That my meds are working on anxiety and depression. I really hope so.

How Far Would You Go?

We are quick to judge someone who abuses drugs. But shouldn’t we evaluate what led them to use such methods in the first place?

The first time I smoked weed was because I felt depressed and wanted to feel anything else. I didn’t know I was in a depressive episode at that time.

I no longer use it, I actually rather despise the substance.

But it is not the only drug.

I want to feel guilty about abusing my psychiatrist’s trust but I am not the type to feel much remorse.

The powder can work better than the whole. Your nose may ache and the initial rush is so heavy you feel like your heart will explode out of your chest. But I found if you balance the drug with another… then you can excel.

In a way, it is typical cliche college student. They say a ridiculous amount of college students abuse stimulants but I’m not sure of how accurate that is. I have yet to meet any who do but then again- I don’t have many friends and I’m sure it is not something most will announce to the world.

It is not something I do that often, at least not anymore. It is something I do when I’m desperate. I felt so stressed out that I couldn’t function- I couldn’t focus, I couldn’t get started- and the seconds were ticking away.

The pressure to never fail. Not a single class. You want to go to grad school, don’t you? You want to be a success, you want this career because for some reason you have equated it to happiness.

You’d do an awful lot to get this, wouldn’t you?

There are some who would go further than I am. Sabotage their peers even. I am not so devious.

Shouldn’t I feel bad that I have to use these methods at times? I should but I don’t. Like I said earlier, I’m not the type to feel guilt. Would I feel more accomplished if I did it the “right” way? Eh. Maybe. But I’d probably see no real difference. Either way I got the work done- that’s what matters, right?

I’m driven to these methods by expectations. Expectations that were put on me by family and by myself. Ever since I was little it was like my whole life revolved around my future career. Was it my fault? I don’t know. My siblings are all older than me by quite a bit. When I was old enough to start having a good concept of the future, my siblings were all determining what they wanted to do in this world. It made me ask myself the same question. And for as long as I can remember I have had a career goal. I revolve my life around it. But I don’t want to. I want to be happy and have fun.

So I come to be between a rock and a hard place. I can either spread out the time spent studying by not going out drinking or I can get it done in one night by working excessively (and perhaps with a little help) and go drinking.

I’ve done this to myself. I feel trapped in a world where career is everything. But to get to career, I have to get through college. And let me be honest- I hate college. Or at least, I hate the pressure. The deadlines, the high marks, everything. I wish I could learn in an enjoyable way. But let’s face it, I hate my major. I love my minor. Both are useless unless I can get into grad school. I’ve given up on med school, which is what I have completely devoted my college classes towards and it is too late to go back. I am shifting my goal but it doesn’t exactly align with what I’ve done.

What a mess.

Stability… does that word even truly apply to me, ever? You would think so. But I don’t think so. I am always a little up or down. Always have some unhealthy addiction. Am always a little self destructive.

Tonight I used unethical means to get some school work done.

But will you judge me before you even consider what made me want to?

Don’t call me lazy. But if you want… you can call me desperate.

-Quinn

Bits and Pieces

Lately I have been having short periods of time where I feel happy, not blah and fatigued. I can joke and laugh. I guess other people feel that a lot.

I wish I knew what brings it on but it seems to be sporadic.

Update…

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About my last post…

The one where I talked about how suicidal I was today.

Well I went to take my meds… And saw I hadnt taken them last night.

I cried. Sometimes we bipolars get it in our heads to quit, which I even considered recently, but last night I simply forgot…

And then I wanted to kill myself today.

Please take your meds everyone. Please dont forget.

-Quinn

My Bipolar Face is Not MY Face.

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It is Worldwide Bipolar Disorder day (okay so this post is a couple minutes past midnight, but close enough). From what I’ve gathered, we are supposed to show our faces.

But I will do no such thing. My anonymity is essential to my life.

I severely cut myself late November two years ago. I was rushed to the ER by my roommates where I was stitched back up. I was lucky I didn’t hit any major blood vessels. If you look close enough, you can see a large vessel right above the scar. But it was deep enough to see my tendon. At that time, I was in throes of some sort of mood chaos. I hadn’t been diagnosed with bipolar yet. I later found out that my therapist was desperately trying to contact my psychiatrist to get me off those medications immediately because they were making me worse.

Friends would come over for game night, which I didn’t participate in, but I did do my best to be as distracting as possible. I would get into these moods, where I’d laugh hysterically, ramble away. I’d lose myself. I thought I was just having a good time. On occasion I would clean my fish tank with such focus, I demanded perfection, not a drop of dirt (even if some remaining dirt is good), it had to be pristine.

I would prepare myself for studying by taking a knife to my skin. It soothed the thoughts, it soothed the chaos. And when I lost focus, when my friend tutoring me got too frustrating, I would cut myself again to regain focus. Cutting myself worked better than any stimulant I’ve ever taken for focus.

One night we had friends over and I was lost in this person who wasn’t me- but a “better version” of me. She would jump around and entertain everyone. She had the idea to play shirtless Twister. So all the guys did. And then she decided to test her roommate, to see if she had the guts to do it too. She did, with some encouragement. The whole idea was stupid, pointless. But this version of me was so desperate to do something wild, and nothing ever seemed to be enough. My friends were too tame, and that was best for me, even if I hated it.

Another night we were returning from a store and pulling into the campus parking lot when a police officer holding a shotgun stopped us. We were informed there was a gunman on campus and we needed to go elsewhere until he was found.

I found this hilarious.

We went to our friend’s place and I was energized. I was excited about the gunman. My friend’s roommate was rather cute and in the military (which was a big bonus to me), so I tried to flirt with him, I wanted to drink with him. But some part of me was too scared. Some part of me knew I was acting way out of line, and unattractively so. So instead I tried to calm down by laying on the couch and fiddling with my knife, particularly pleased with myself because it made my roommate nervous.

When we were finally cleared to return to campus, I plopped down on my roommate’s bed. I started laughing hysterically. And tears began to stream down my eyes. Between fits of laughter I asked them if they wanted to know something hilarious. They said sure. I laughed as I cried, and hiccuped the words, “My therapist tried to force me to go to the hospital today… Isn’t that hilarious!?!” I stopped laughing, I wiped the tears off my face, and left the room. My friends exchanged concerned glances.

My bipolar has never been the most extreme. Perhaps because I am so young still. The trip to the ER was a changing point though. My parents received the bill, I asked to go into outpatient treatment, and the treatment center decided I needed to be inpatient. Sometime in that process I was diagnosed bipolar, I don’t even remember it.

The paperwork says I was crying and laughing during my initial evaluation. That I said, “I don’t care if I die. And I have 17 knives at home.”

I later lied and said they misheard me, I only had 7- not 17.

I actually had 21.

In any case, the whole experience was a wake up call. I still can’t believe the way I acted. The way I told everyone cutting wasn’t a problem, that it was fine, and I was safe. When the reality is that less than an inch made the difference between life and death for me.

The school suspended me for cutting myself on campus. I was told I’d be arrested if I came on campus. I was evicted, with a police escort.

But that’s another story.

I think that perhaps I was in a mixed episode for most the beginning of the second year of college. I was so up but I was also so down. I would cut as punishment. I would cut to focus. I would cut if I was happy. I would cut if I simply felt like it. I did it constantly. And the therapist saw what was coming when he tried to force me into the hospital. He saw that ER trip coming.

I know I talk a lot about self harm. For me, it goes hand in hand with bipolar.

I was doing well with abstaining until my last episode, which was this last winter. I had nothing to lose, so I was cutting myself again. My legs still show sleek red lines going in every direction. The mania wanted me to.

With me, there are no neat, clean cut, straight lines. I go to town, slicing and dicing with anger. There is nothing calculated or calm or in control about it. Look at the scars, you’ll see.

The mania also wanted me to vandalize things. I felt as if no one understood what I was feeling. I would wake up fine, but I’d quickly degrade. For some reason, I was possessed by the need to make it worse. So I would take too much Ritalin and I’d drink coffee. I left the house to go to therapy when I came up with a brilliant plan. I was going to go to a popular mall and cut words into the bathroom stall, then cut myself, smear my hand with blood, and leave a bloody hand print right there on the stall wall.

I needed people to know. And not just know- but feel. I was terrified of myself, I couldn’t slow down and I couldn’t stop myself. I wanted someone to walk into that bathroom stall and feel the terror the hand print was sure to elicit.

People had to know.

So I went to a sporting good store and bought a cheap utility knife (since all mine had been entrusted to someone for safe keeping). But the traffic on the freeway caused me to miss my opportunity. I had to go to the psychiatrist and I didn’t have time to stop by the mall.

The idea lingered in my head but I never did it. My therapist said she almost involuntarily hospitalized me for my urges to vandalize.

Another idea I had was to go to the local park and carve words into the trees. It was daytime, so I went for a walk. I casually strolled around the park, stopping to examine trees, trying not to be too suspicious as other people were there. I did hide behind a tree and barely scrawled the words, “Help me” into a tree, but you’d never be able to tell. But I had plans… plans to come back later that night when it would be empty and leave large, blatant messages in prominent trees. I specifically wanted to write, “I’ve gone mad.” Or something like it. And then, in a hidden spot, where only the adventurous would see, I’d leave a secret message, “Help me.”

But when I made an excuse to leave that night, I decided to go to the bookstore before the vandalism. I wandered around the bookstore, I tried to focus on the titles of the books but my vision blurred far too much. I wandered around, paranoid that everyone knew I was not okay. The bookstore overwhelmed me. There were too many books, too many people, too much of everything. So I drove home, back to that park. But I detoured. I saw the Christmas lights. And I drove down a street that was heavily decorated. The euphoria washed over me. I drove around for however long, just admiring the lights. (I’ve never been impressed by Christmas lights, by the way). In the end I decided trees were just too beautiful to ruin with my knife.

Another day it was raining but I was desperate to go soak it in. I told my mom I was going for a walk and grabbed an umbrella. But the rain stopped and I found myself at the park alone. I didn’t know what to do, I didn’t want to carve the trees because it was my good knife (that I paid a lot of money for). So instead I found the swing set. And I popped in some earbuds. The euphoria was intense. But I also had paranoia, so I tucked my knife into my hand, positioning it so I could pop it open in a second and … well, you know.

Of course this was ridiculous, as the closest entrance I had full view of, and an attacker would have to walk across a large open field to get anywhere near me from behind (and I checked constantly).

I could go on about the mania I felt this last winter. It was the first time I knew I was manic. I’m only 21, my episodes aren’t very severe. But I still have many years ahead of me. I know now that my bipolar can take charge at any moment. I had to miss my last quarter of school because I simply went to class high on pills, then I’d cut between classes, and I couldn’t focus. I was just too manic.

I just started my first day of the new quarter. It was terrifying.

I wrote this and it is very disorganized. But that in itself is what mania is for me. It is chaos in my mind.

Mania is a 5’4, 97lb female with dirty blonde hair, brown eyes, an asymmetrical pixie cut, a small assortment of bold ear piercings, and a tattoo on her side rib cage. It is that girl being the life of the party, laughing while crying, cutting herself, plotting to vandalize to make a statement. A girl sitting on her bed, head in hands, her thoughts screaming, “SHUT UP SHUT UP” over and over again, trying to make the whirlwind stop so she could do something as simple as brushing her teeth.

So you want to see the face of a bipolar person? Well I can’t show you that. My career goals don’t allow me to make my disorder public, just yet.

But I’ll compromise. You can see how I intended to look during my vandalism urges (minus the sunglasses).

While some may brave a bare face… my true bipolar face, is not my bare face.

This is what bipolar looks like on me.

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My Name is Not Bipolar Disorder

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The roller coaster analogy never really spoke to me. I didn’t experience a thrilling ride. It was more like a tornado or a hurricane, a central column of madly swirling air that threw everything in its path asunder only to die and leave a still, bleak landscape of broken trees and shattered homes where no one could live. “Things fall apart,” goes the Yeats poem. “The center cannot hold.” Mania causes us to lose sight of our center and depression causes us to forget that we ever had one.

I count myself fortunate that I never ended up in jail though perhaps some might have made a case for it. Drugs and alcohol, at least, never presented themselves as ways to temper my emotions — I distrusted them. I let whatever flew out of the maelstrom hit me square on and I did nothing to numb the pain except hide in my room or rage unexpectedly.

Bipolar is one of those illnesses that everyone who has watched a Lifetime Channel movie thinks that he or she knows, but they have no clue. The illness doesn’t make us evil. Most of the things that I did in my rages and panics were moved by an innocent heart. I have found the same to be true of others. But often what we do is hurtful. It is no wonder that outsiders see us as brutes. When I have acted with the most vigor and erraticness, I have done so the name of one or another great crusade, marching against problems that often only I could see. Heraclitus once said that “The waking have one and the same world, the sleeping turn aside each into a world of his own.” Bipolar creates in that waking world a sub-world that we who labor with the illness experience on our own. In it we sleep a sleep of wakefulness. Perhaps this is due to the restlessness of mania that keeps us up night after night, day after day.

Eventually things fall apart and we find our minds in bizarre places.

My worst psychotic episode happened when I was working over Christmas break in college. The world became a maze of passageways like I see in my dreams, the doors to the rooms hazy and difficult to find. I believed that I was God and that I had messed up the world. Once that a coworker asked me what was wrong. I did my best to deny that the veils between us did not exist. It was a tricky maneuver but I pulled it off. Every night I returned to my room and found darkness. When the other students returned, I felt less lonely, but I felt I wasn’t one of them. I hid in my room, held my tongue and kept my condition to myself. They knew nothing of my obsession or the distortions that blurred my cognition. Sometimes they would find me staring into space and wonder if I was on drugs. I was stone cold sober. An ill gift of prophecy settled over me. I believed that I could predict what people were going to say. I became sensitive to the occasions when people would utter words that I had encountered in my reading with no connection to the class or the context. My skin jumped at their mention and my shivers from remembering the incidents of my day kept me up. The episode slowly lifted over the semester, though I did have to drop a class.

Sixteen years passed before I sought the aid of a psychiatrist. Eleven more needed to turn over before I started telling the truth about my experiences. Oh the rages, the insomnias, the dark nights of the soul, and the mind-crushing paranoias that troubled me even though I took antidepressants and thought myself cured! The word “bipolar” was, at last, used. During the eleven years of denial, I refused to believe that it applied to me though I numbered it in others. One day in the hospital, it caught up with me, though. The new attachment to my identity electrified me. I read all I could, kept finding myself between the pages, and in the end surrendered to my diagnosis. Then I took my pills as prescribed, dieted, exercised, and broke down the walls that kept the world outside of my dream.

Though my doctors named my condition, my condition was not me. I had always had doubts about this wreck of a brain that always seemed to say and do things against my better judgment. Outsiders sometimes tell me that mood stabilizers erase the personality. They have no clue. When I got on lithium and it started working, I found myself able to be the me that I knew I always was, free of the control of the randomness-loving demon who operated my body like a slot machine whose prizes were shame and sorrow. Over the years, I have added and subtracted more medications to my cocktail until I had a firm foundation upon which I could finally build a brick house. When the madman tried to seize control of my inner weather, I had a series of steps that I could take to seal myself inside my house and wait out the storm. This security enabled me at last to separate myself from my illness. I knew, at last, who I was. Life was no longer a bad dream.

Today

I don’t know if reading through my posts I sound like I have a lot of present mood disorder issues. I wish I didn’t have it or have to deal with it, but I am much, much, much better than when I was first diagnosed.

At that time, I was psychotic, but even before then, I had times when I would cry for no reason or not leave the house. I haven’t been hospitalized since 2005 or had psychotic symptoms since 2006. I have coping skills. I don’t micro-manage symptoms. If i have a good day I enjoy and take advantage without worrying if it is going to turn into mania.

My biggest issue now is anxiety and even that is better. It is hard for me to notice, but people around me tell me I seem more at ease. I do presentations for NAMI which is hard for me to believe with my social anxiety. I am not a great speaker, but they go over well.

I am married. I was diagnosed after 7 years of marriage, so my husband didn’t sign up to marry someone with a mental illness but he has been supportive. I have 2 teenagers, who are doing well, for teenagers. I do some volunteer work, I would say an issue i have now is time management.

lorib

 

A Quick Update On Abaven Before The Big Intersectionality Post

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Alright. So, readers seem to want to know how my autism and bipolar interact with each other. I will address this on the first.

I understand that this is first and foremost a blog about mental illness. However, something important happened to my relationship with Abaven. I decided I couldn’t wait until the first to tell you. And since I did mention Abaven in my maiden post, I would like to give you a short update.

I saw Abaven last Saturday. We visited a friend in the hospital, and then took a very long walk around a certain outdoor mall. After that, we went out for burgers at In ‘n’ Out. And over the course of all this, I realized something.

I do not think i’m in love with Abaven, and it would be a mistake to act as if I was. I am extremely comfortable around him, yes, but that doesn’t translate to being in love. I can talk to him about almost anything, and he won’t judge or be stern. If he rebukes, he does it so gently that I don’t feel too bad. And it’s a blessing to have someone like that in my life. In the unlikely situation that he asked me to marry him, I might say yes, because even though i’m not in love with him, he’s very near and dear to my heart. I would be honored to spend the rest of his life with him. But that’s probably not going to happen. Better to be on the lookout for someone with Abaven’s qualities.

Enough about him for now, see you all on the first!

Sandy Dumont R.I.P.

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We lost one of our first and oldest members, Sandy Dumont, from an infection complicated by gastrointestinal issues and Parkinson’s. She came to us at our second meeting and stayed with us until just a few weeks before we lost her. Lynn and I visited her in the hospital and talked for a couple of hours about the years we had known each other and her plans for recovery. Her daughter Stephanie joined us on that Sunday afternoon only a few weeks ago. She kept us informed about Sandy’s progress as she entered a convalescence home and about the first onset of the infection. Stephanie is, as you might imagine, taking this very hard. Before I heard the news, I felt tired from a morning planting and dibbling at the Irvine Ranch Conservancy Native Seed Farm. The news put more weight on my shoulders and limbs as I made calls and posted notices in various places on the web.

Sandy saw our Monday night support group as a second family. The younger people in the group — and I include myself — listened to her stories about her shock treatments, her struggles with Parkinson’s, and her sojourns in various mental hospitals in the days before lithium let her go home. She had tried living without the meds and she was grateful, at last, for having them. Her admiration for her psychiatrist was immense. It was through him that she found us. We, in turn, took hope from her story and became convinced through her that we could have a life with this illness riding in our skulls.

I don’t know who will fill the chair to my right at Monday meetings. I leaned on Sandy not only to give great and timely feedback to those who needed it — she was no self-appointed pundit or expert on bipolar disorder but spoke only from her own experiences and insights — but to be my backup as Vice President of the chapter. She was a good judge of character who I relied on when deciding who to appoint to the Board, who to trust as a facilitator. There’s a hole that needs filling, one that isn’t just a position on a board of directors but also for a friend and confidant. I am not sure where to go now. She is already missed.