Reminded of Algernon

Not sure what triggers so proceed with caution

I have 3 brothers and 2 sisters. I used to have 4 brothers. Pat passed away over 30 years ago. For a long time I didn’t speak about him. Everything upset me too much. I speak some now. But, it is I sad story and I don’t want to discourage people. Different times, different people.

Pat had a breakdown at 20 when he was at college. He came home a different person, first he would just stare. Then he was obviously mentally ill. He claimed he had been brainwashed by a cult,.he was also the soccer player Pele’ and other people. He was unpredictable and scared me. He would try to act ” normal” mimicking others, which was even worse. My father felt Pat could just stop it if he wanted and would yell and even hit him.

my father didn’t believe in mental health treatment and the only help my brother got was when he was picked up on 72 hour holds. They would give him typical antipsychotics, this was the late 70s, and send him home. He would be psychotic and sedated which just made his differences more apparent.

then, in 1985 he was picked up in a different county. They tried a different medication. lithium. Everyone told me he was back like his old self again. It was as close to a miracle as I could imagine. But, when I went to visit he wasn’t well. He was looking at me suspiciously. He was talking about the bible excessively and was hard to understand. My mother said they were having trouble finding the right dosage.of medication.

he took off that night. I never saw him again. He went to Yosemite. He fell at a large waterfall and died. Suicide or risky behavior? I am not sure.

I have all kinds of mixed up feelings. Mainly guilt. That I didn’t try to understand more and be closer and not so afraid, that I didn’t do more to get him some kind of help, that I am fine and he wasn’t.

and just sad that he was fine for a little while and then started to go back into the psychosis he had been trapped in for years.

(About how the title: my children were talking about ” Flowers for Algernon”. I know the story is about intellectual disability, but the idea of improving and then going back to the old state hit me as similar and sparked the memories)

 

The Flatland Dilemma in Interpreting Bipolar Mania.

People in mania are known for flights of fancy and the rapid association of ideas. Of all the forms of intelligence that we may possess, it is only the ability to recognize analogies and build associations that suffers when we go on mood stabilizers. I think it can be a mistake for outsiders to believe that this ability leads to wild, random, and unusable linkages in our mind. I find that my ability to write poetry — meaningful poetry — suffered after I started taking lithium; I lost insights. Of course, many other more negative traits like my irritability, grandiosity, and racing thoughts disappeared so I consider it a net gain.

The things we bring back from our adventures in mania land aren’t all rubbish. Poets such as Shelley and Byron depended on their manic states to generate compelling material. Some scientists have conceived startling new concepts. Isaac Newton is a classic example of a maniac whose insights transformed the science of his day and enabled him to revolutionize mathematics with his invention of calculus. The trouble comes when we try to bring our insights back from the fine and private place of our sickness.

William Knowland’s Flatland — which was written to explain the difficulties inherent in Faith — presents a useful allegory for our struggle to explain what we have found. Imagine a two dimensional figure, say a square. Imagine that it is you. Your perceptions are limited to two dimensions, so while you can make out one dimensional figures such as lines and points, you cannot appreciate three dimensional ones. If you were one dimensional, squares would appear as lines to you. Angles and other aspects of the square would invisible.

Read More

What could go wrong?

FDA asked to consider adherence sensor on Abilify

http://www.modernhealthcare.com/article/20150910/NEWS/150919997

http://www.proteus.com/press-releases/u-s-fda-accepts-first-digital-medicine-new-drug-application-for-otsuka-and-proteus-digital-health/

Proteus Health, located in Redwood City CA, along with Tokyo based Otsuka Pharmaceutical Co. have a new drug application that is ready for review by regulators determined by the FDA.

The new drug is embedded with an ingestible sensor. When the medication, and sensor, reach the stomach, it sends a signal to a patch the patient wears externally. The information can be sent to physicians or caregivers with consent.

The sensor has previously been approved in a placebo taken along with a medication.

The goal is to help with medication compliance. All well and good up to this point. But, what is the first drug they choose? Abilify, an atypical anti-psychotic. It isn’t always taken for psychosis. It can be used as an add-on for depression and other ways. But, it is also used to treat psychosis.

Some, not uncommon, delusions are that:

you have sensors embedded, that your medicine has been poisoned or tampered with or that people are tracking you. This is to be taken by consent, but personally, I think they chose a bad medication.

I don’t know what is wrong with injectable abilify? That would be my choice.

 

How to Talk Listen to a Mentally Ill Person

The mentally ill person is not a child. I have had the experience of would-be helpers who treated me so. When I attempted to describe what I needed, they argued and belittled me for needing help. I felt very alone and one result was that I stayed away from the church where this person was not only a member, but an officer of sorts. It was hard for me to treat him with charity. I turned my back when he greeted me afterwards because I could not stand his hypocrisy.

We are sensitive about being patronized because of our condition for the same reasons that African Americans are sensitive about race. No one wants to be excluded on the basis of a condition that he cannot help. No one wants his condition denied. No one wants to feel cut away from the body politic. What we want is for people to take us seriously whether or not we are in episode.

Many of the problems that people have with the mentally ill have to do with communication. Those who wish to help (and those who do not want to help) believe that the objective of interaction is to get the mentally ill person to follow a treatment plan or pull herself up by her bootstraps or realize that it is “all in your mind”. (“Have you tried not being depressed?”).

Read More

Reality Testing in Virtual Reality

Social media has become a large part of my daily activities. My friends live in my computer. I am married and have a family and do interact in the real world, too.

One thing about the Internet is things go so fast. And then you can’t take back that email or tweet. I can go off on tangents in 140 characters or less.

It is easy to feel like you are being cyberstalked. People do hack computers or follow people ‘s online activity, but paranoia can make you feel like it is happening, also.

Stress exacerbates my symptoms so it really is not a good idea for me to stay up getting tense in debates. I like to discuss ideas and facts just not argue.

I used to get messages through media. They would be hidden in written words, spoken, sometimes visual. They stopped years ago. But, I would search for clues. Everyone thought the computer was making me crazy, but the messages were everywhere.

My delusions are a lot like the Truman Show where I think everyone else is acting, filming, with product placement even. That I just can’t break through that 4th wall. Delusions are different depending on culture. I have heard voices. They weren’t mean. They would guide me and humor me. I actually missed them, I felt lost when they stopped.

My Bipolar Face is Not MY Face.

It is Worldwide Bipolar Disorder day (okay so this post is a couple minutes past midnight, but close enough). From what I’ve gathered, we are supposed to show our faces.

But I will do no such thing. My anonymity is essential to my life.

I severely cut myself late November two years ago. I was rushed to the ER by my roommates where I was stitched back up. I was lucky I didn’t hit any major blood vessels. If you look close enough, you can see a large vessel right above the scar. But it was deep enough to see my tendon. At that time, I was in throes of some sort of mood chaos. I hadn’t been diagnosed with bipolar yet. I later found out that my therapist was desperately trying to contact my psychiatrist to get me off those medications immediately because they were making me worse.

Friends would come over for game night, which I didn’t participate in, but I did do my best to be as distracting as possible. I would get into these moods, where I’d laugh hysterically, ramble away. I’d lose myself. I thought I was just having a good time. On occasion I would clean my fish tank with such focus, I demanded perfection, not a drop of dirt (even if some remaining dirt is good), it had to be pristine.

I would prepare myself for studying by taking a knife to my skin. It soothed the thoughts, it soothed the chaos. And when I lost focus, when my friend tutoring me got too frustrating, I would cut myself again to regain focus. Cutting myself worked better than any stimulant I’ve ever taken for focus.

One night we had friends over and I was lost in this person who wasn’t me- but a “better version” of me. She would jump around and entertain everyone. She had the idea to play shirtless Twister. So all the guys did. And then she decided to test her roommate, to see if she had the guts to do it too. She did, with some encouragement. The whole idea was stupid, pointless. But this version of me was so desperate to do something wild, and nothing ever seemed to be enough. My friends were too tame, and that was best for me, even if I hated it.

Another night we were returning from a store and pulling into the campus parking lot when a police officer holding a shotgun stopped us. We were informed there was a gunman on campus and we needed to go elsewhere until he was found.

I found this hilarious.

We went to our friend’s place and I was energized. I was excited about the gunman. My friend’s roommate was rather cute and in the military (which was a big bonus to me), so I tried to flirt with him, I wanted to drink with him. But some part of me was too scared. Some part of me knew I was acting way out of line, and unattractively so. So instead I tried to calm down by laying on the couch and fiddling with my knife, particularly pleased with myself because it made my roommate nervous.

When we were finally cleared to return to campus, I plopped down on my roommate’s bed. I started laughing hysterically. And tears began to stream down my eyes. Between fits of laughter I asked them if they wanted to know something hilarious. They said sure. I laughed as I cried, and hiccuped the words, “My therapist tried to force me to go to the hospital today… Isn’t that hilarious!?!” I stopped laughing, I wiped the tears off my face, and left the room. My friends exchanged concerned glances.

My bipolar has never been the most extreme. Perhaps because I am so young still. The trip to the ER was a changing point though. My parents received the bill, I asked to go into outpatient treatment, and the treatment center decided I needed to be inpatient. Sometime in that process I was diagnosed bipolar, I don’t even remember it.

The paperwork says I was crying and laughing during my initial evaluation. That I said, “I don’t care if I die. And I have 17 knives at home.”

I later lied and said they misheard me, I only had 7- not 17.

I actually had 21.

In any case, the whole experience was a wake up call. I still can’t believe the way I acted. The way I told everyone cutting wasn’t a problem, that it was fine, and I was safe. When the reality is that less than an inch made the difference between life and death for me.

The school suspended me for cutting myself on campus. I was told I’d be arrested if I came on campus. I was evicted, with a police escort.

But that’s another story.

I think that perhaps I was in a mixed episode for most the beginning of the second year of college. I was so up but I was also so down. I would cut as punishment. I would cut to focus. I would cut if I was happy. I would cut if I simply felt like it. I did it constantly. And the therapist saw what was coming when he tried to force me into the hospital. He saw that ER trip coming.

I know I talk a lot about self harm. For me, it goes hand in hand with bipolar.

I was doing well with abstaining until my last episode, which was this last winter. I had nothing to lose, so I was cutting myself again. My legs still show sleek red lines going in every direction. The mania wanted me to.

With me, there are no neat, clean cut, straight lines. I go to town, slicing and dicing with anger. There is nothing calculated or calm or in control about it. Look at the scars, you’ll see.

The mania also wanted me to vandalize things. I felt as if no one understood what I was feeling. I would wake up fine, but I’d quickly degrade. For some reason, I was possessed by the need to make it worse. So I would take too much Ritalin and I’d drink coffee. I left the house to go to therapy when I came up with a brilliant plan. I was going to go to a popular mall and cut words into the bathroom stall, then cut myself, smear my hand with blood, and leave a bloody hand print right there on the stall wall.

I needed people to know. And not just know- but feel. I was terrified of myself, I couldn’t slow down and I couldn’t stop myself. I wanted someone to walk into that bathroom stall and feel the terror the hand print was sure to elicit.

People had to know.

So I went to a sporting good store and bought a cheap utility knife (since all mine had been entrusted to someone for safe keeping). But the traffic on the freeway caused me to miss my opportunity. I had to go to the psychiatrist and I didn’t have time to stop by the mall.

The idea lingered in my head but I never did it. My therapist said she almost involuntarily hospitalized me for my urges to vandalize.

Another idea I had was to go to the local park and carve words into the trees. It was daytime, so I went for a walk. I casually strolled around the park, stopping to examine trees, trying not to be too suspicious as other people were there. I did hide behind a tree and barely scrawled the words, “Help me” into a tree, but you’d never be able to tell. But I had plans… plans to come back later that night when it would be empty and leave large, blatant messages in prominent trees. I specifically wanted to write, “I’ve gone mad.” Or something like it. And then, in a hidden spot, where only the adventurous would see, I’d leave a secret message, “Help me.”

But when I made an excuse to leave that night, I decided to go to the bookstore before the vandalism. I wandered around the bookstore, I tried to focus on the titles of the books but my vision blurred far too much. I wandered around, paranoid that everyone knew I was not okay. The bookstore overwhelmed me. There were too many books, too many people, too much of everything. So I drove home, back to that park. But I detoured. I saw the Christmas lights. And I drove down a street that was heavily decorated. The euphoria washed over me. I drove around for however long, just admiring the lights. (I’ve never been impressed by Christmas lights, by the way). In the end I decided trees were just too beautiful to ruin with my knife.

Another day it was raining but I was desperate to go soak it in. I told my mom I was going for a walk and grabbed an umbrella. But the rain stopped and I found myself at the park alone. I didn’t know what to do, I didn’t want to carve the trees because it was my good knife (that I paid a lot of money for). So instead I found the swing set. And I popped in some earbuds. The euphoria was intense. But I also had paranoia, so I tucked my knife into my hand, positioning it so I could pop it open in a second and … well, you know.

Of course this was ridiculous, as the closest entrance I had full view of, and an attacker would have to walk across a large open field to get anywhere near me from behind (and I checked constantly).

I could go on about the mania I felt this last winter. It was the first time I knew I was manic. I’m only 21, my episodes aren’t very severe. But I still have many years ahead of me. I know now that my bipolar can take charge at any moment. I had to miss my last quarter of school because I simply went to class high on pills, then I’d cut between classes, and I couldn’t focus. I was just too manic.

I just started my first day of the new quarter. It was terrifying.

I wrote this and it is very disorganized. But that in itself is what mania is for me. It is chaos in my mind.

Mania is a 5’4, 97lb female with dirty blonde hair, brown eyes, an asymmetrical pixie cut, a small assortment of bold ear piercings, and a tattoo on her side rib cage. It is that girl being the life of the party, laughing while crying, cutting herself, plotting to vandalize to make a statement. A girl sitting on her bed, head in hands, her thoughts screaming, “SHUT UP SHUT UP” over and over again, trying to make the whirlwind stop so she could do something as simple as brushing her teeth.

So you want to see the face of a bipolar person? Well I can’t show you that. My career goals don’t allow me to make my disorder public, just yet.

But I’ll compromise. You can see how I intended to look during my vandalism urges (minus the sunglasses).

While some may brave a bare face… my true bipolar face, is not my bare face.

This is what bipolar looks like on me.

11103891_10153306111875628_1761986842_n

My Name is Not Bipolar Disorder

worldbipolarday

The roller coaster analogy never really spoke to me. I didn’t experience a thrilling ride. It was more like a tornado or a hurricane, a central column of madly swirling air that threw everything in its path asunder only to die and leave a still, bleak landscape of broken trees and shattered homes where no one could live. “Things fall apart,” goes the Yeats poem. “The center cannot hold.” Mania causes us to lose sight of our center and depression causes us to forget that we ever had one.

I count myself fortunate that I never ended up in jail though perhaps some might have made a case for it. Drugs and alcohol, at least, never presented themselves as ways to temper my emotions — I distrusted them. I let whatever flew out of the maelstrom hit me square on and I did nothing to numb the pain except hide in my room or rage unexpectedly.

Bipolar is one of those illnesses that everyone who has watched a Lifetime Channel movie thinks that he or she knows, but they have no clue. The illness doesn’t make us evil. Most of the things that I did in my rages and panics were moved by an innocent heart. I have found the same to be true of others. But often what we do is hurtful. It is no wonder that outsiders see us as brutes. When I have acted with the most vigor and erraticness, I have done so the name of one or another great crusade, marching against problems that often only I could see. Heraclitus once said that “The waking have one and the same world, the sleeping turn aside each into a world of his own.” Bipolar creates in that waking world a sub-world that we who labor with the illness experience on our own. In it we sleep a sleep of wakefulness. Perhaps this is due to the restlessness of mania that keeps us up night after night, day after day.

Eventually things fall apart and we find our minds in bizarre places.

My worst psychotic episode happened when I was working over Christmas break in college. The world became a maze of passageways like I see in my dreams, the doors to the rooms hazy and difficult to find. I believed that I was God and that I had messed up the world. Once that a coworker asked me what was wrong. I did my best to deny that the veils between us did not exist. It was a tricky maneuver but I pulled it off. Every night I returned to my room and found darkness. When the other students returned, I felt less lonely, but I felt I wasn’t one of them. I hid in my room, held my tongue and kept my condition to myself. They knew nothing of my obsession or the distortions that blurred my cognition. Sometimes they would find me staring into space and wonder if I was on drugs. I was stone cold sober. An ill gift of prophecy settled over me. I believed that I could predict what people were going to say. I became sensitive to the occasions when people would utter words that I had encountered in my reading with no connection to the class or the context. My skin jumped at their mention and my shivers from remembering the incidents of my day kept me up. The episode slowly lifted over the semester, though I did have to drop a class.

Sixteen years passed before I sought the aid of a psychiatrist. Eleven more needed to turn over before I started telling the truth about my experiences. Oh the rages, the insomnias, the dark nights of the soul, and the mind-crushing paranoias that troubled me even though I took antidepressants and thought myself cured! The word “bipolar” was, at last, used. During the eleven years of denial, I refused to believe that it applied to me though I numbered it in others. One day in the hospital, it caught up with me, though. The new attachment to my identity electrified me. I read all I could, kept finding myself between the pages, and in the end surrendered to my diagnosis. Then I took my pills as prescribed, dieted, exercised, and broke down the walls that kept the world outside of my dream.

Though my doctors named my condition, my condition was not me. I had always had doubts about this wreck of a brain that always seemed to say and do things against my better judgment. Outsiders sometimes tell me that mood stabilizers erase the personality. They have no clue. When I got on lithium and it started working, I found myself able to be the me that I knew I always was, free of the control of the randomness-loving demon who operated my body like a slot machine whose prizes were shame and sorrow. Over the years, I have added and subtracted more medications to my cocktail until I had a firm foundation upon which I could finally build a brick house. When the madman tried to seize control of my inner weather, I had a series of steps that I could take to seal myself inside my house and wait out the storm. This security enabled me at last to separate myself from my illness. I knew, at last, who I was. Life was no longer a bad dream.

Today

I don’t know if reading through my posts I sound like I have a lot of present mood disorder issues. I wish I didn’t have it or have to deal with it, but I am much, much, much better than when I was first diagnosed.

At that time, I was psychotic, but even before then, I had times when I would cry for no reason or not leave the house. I haven’t been hospitalized since 2005 or had psychotic symptoms since 2006. I have coping skills. I don’t micro-manage symptoms. If i have a good day I enjoy and take advantage without worrying if it is going to turn into mania.

My biggest issue now is anxiety and even that is better. It is hard for me to notice, but people around me tell me I seem more at ease. I do presentations for NAMI which is hard for me to believe with my social anxiety. I am not a great speaker, but they go over well.

I am married. I was diagnosed after 7 years of marriage, so my husband didn’t sign up to marry someone with a mental illness but he has been supportive. I have 2 teenagers, who are doing well, for teenagers. I do some volunteer work, I would say an issue i have now is time management.

lorib

 

Post Partum Psychosis in news TW graphic

A mom who beheaded baby had been diagnosed in January with PPP and was not supposed to be alone with the baby. This is what Andrea Yates had and she was supposed to be supervised.

I know we with mental illnesses are rarely dangerous but when you are told we might harm someone, please listen. These were tragedies that didn’t need to happen.

I think my family overreacted. They took me away from my children for a couple of weeks after a psychotic break. I wasn’t dangerous. But, I do understand they were trying to protect them.

The Dangers of Online Mental Health Quizzes

Alright so this is a big topic for me. A fellow author posted a link to a ridiculous quiz on Facebook that I feel the need to (and was asked to) write about.

I am going to take this quiz, step by step, and report exactly what I think about it. And after I will tell you why these quizzes aren’t just silly or stupid, but dangerous (with my anecdote evidence- reliable I know).

Alright, so when you click on the quiz, it starts off by saying, “Are you prone to dramatic and unpredictable mood-swings? What about anxiety and frustration? What’s your level of uniqueness? Find that all out right here.” Right off the bat I am annoyed. This perpetuates the stereotype that bipolar is sudden changes in mood. Going from happy to sad and back in a second. Unless you have extremely rapid-cycling bipolar, this is very unlikely. Bipolar is experienced in episodes. Generally meaning they have to last at least a few days. Although I do have little spikes of bipolar feelings, they aren’t full episodes and are mostly just annoying.

And for anxiety and frustration, yeah those can happen. I have anxiety that is sometimes correlated with my bipolar. But bipolar itself doesn’t specify that you need to have anxiety. Additionally, “frustration?” Really? Who doesn’t experience that? And lastly- “What’s your level of uniqueness?” That makes me want to hit my face on my keyboard. Being bipolar is unique in a sense, because a small amount of the population experiences it. But in this context it is taken in a positive way. In the United States we have a culture where individualism and self-expression is very important. If you’re unique, then it’s usually considered a good thing. But as far as I’m concerned, bipolar is not a good thing.

And then, of course, it adds that this should be used as a diagnostic test. And I’ll explain later why that really doesn’t matter.
Read More