When I am very depressed — which is not now — my brain feels solid and hard. It’s the surest guide that I have had the Big One, the low that can only be borne by plodding steps and lowered head. Yea, they will write it off as merely bad posture. I will marvel at the adamantine of my cerebellum, the heaviness of my medulla oblongata. I will ponder the sharpness of the rock inside my skull and, when the feeling has toppled away like a raven falling from a cliff towards its nest, I will desire its return because it is only then that I can feel that I have a brain and am, in fact, alive.
Author Archives: JoelS
Why We Shouldn’t Let Our Loved Ones Do the Talking about Stigma
Glenn Close is a woman who I admire for her dedication to her sister and her resolve to upend stigma. When Jessie Close was 51 years old, Glenn drove her to McLean Hospital in Boston where she was diagnosed with bipolar disorder. Their commercials questioning the labels applied to mentally ill family members and their relatives are known to millions. We have every reason to admire and respect her for her work. But recent research suggests that maybe family members aren’t the best ones to be talking about stigma.
The research has nothing to do with the political issues surrounding mental illness. A pair of researchers looking into the rise of a culture willing to accept same sex marriage outline a successful strategy that we who live with bipolar disorder and other organic brain dysfunctions can employ:
Michael LaCour, a UCLA doctoral candidate in political science, and Donald Green, a Columbia University political science professor, have demonstrated that a single conversation can go a long way toward building lasting support for a controversial social issue. In addition — nearly as surprisingly — the effect tends to spill over to friends and family members.
The key is putting voters in direct contact with individuals who are directly affected by the issue.
What Do I Do When I Am Manic?
I waste time. But not in the same way that I usually do it. I’m always up nights, twittering, reading, working on recent photos. My day ends somewhere between 3 and 4, at which point I go to bed, which alerts the cats to begin their trills of demand for food from my softhearted wife. I use a cocktail of Xanax, Benadryl, Doxepin, melatonin, and my nighttime anti-psychotics and mood-stabilizers to stall my brain into torpor. I sleep well and I sleep deep until about noon or one o’clock in the afternoon, an unconventional hour but one that I can manage thanks to my unemployment and insistence on afternoon appointments.
If I am manic, I forget to take the meds until a later hour and do not feel their slowing until after Lynn has gone to work at nine. I lay in bed, staring at the pockets inside the sheets, groping for rest. Mania purposes me to a different set of activities, First, reading is impossible. My eyes fly over the words, ignoring the middles of sentences and barely noticing the presence of paragraphs. I have missed whole scenes and whole characters when I am in this state. For this reason, as my condition advanced in the late twentieth century, I read less and less. Volumes I wanted to peruse stood on my shelf for years, unopened and stinking of dust. There was no accomplishment during this time except as resulted from my strange habit of digesting dictionaries.
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11 Commandments for People Living with Bipolar Disorder
Recovery from bipolar disorder is almost like a religion or an ethical system. Certain devotions must be part of our lives if we are to recover our balance.
- I shall hold myself accountable for all works of my body and my mind including those which I wreak when I am in episode.
It is important, I feel, not to separate the illness from ourselves. We did the things that happened while we were in episode. There was no second soul seizing control of our bodies. Our mind is a stream that flows continuously, sometimes over rough ground, sometimes in placid stretches, and sometimes over cliffs. We own all these states of our being. - I shall never use my illness as an excuse.
Our episodes explain what we did. The difference between an explanation and an excuse is this: An explanation asks only for forgiveness. An excuse entitles us to both trust and forgiveness. We do not deserve the former until we have earned it.
Did the Meds “Erase” My Personality?
The thing I don’t like about being angry is that it isn’t the me that I want to be. It’s a nuclear fireball, a complete eradication of the rest of my personality. For a few seconds, everything that I love becomes less than a memory. The witnesses to my explosion see a six foot six inch tall brute with a beard screaming at the top of his lungs and waving his arms about. Wouldn’t you be scared? Wouldn’t you keep that memory in your head purely for reasons of defense?
These scenes came more frequently when I was soaring in and out of manias and mixed states. It isn’t hard to see that my anger could be tied to my suicidal inclinations. Because I could not and would not destroy the objects of my ire, I turned that impulse towards myself. One time too many it brought me to a place where I was studying the veins on my wrist. Beyond the eradication of myself that was caused by my disease, lay the prospect of self-annihilation as punishment or revenge.
Maybe now you can understand my reaction that came while I was planting vinegar weed at the Native Seed Farm. I had done something stupid — I had mentioned my involvement in the Depression and Bipolar Support Alliance in a passing comment. Most people let it drop, but this one woman wanted to know more. What were the people like? Was I ever scared? And then the most stigmatizing thing someone can say about someone who takes his meds faithfully: don’t the meds erase your personality?
You Think This is My Face
I’m not wearing this mask because I live with bipolar disorder. I wear it because you fear my real one.
Go to any costume store and you will see plenty of masks purporting to depict psychotics. If you are to believe the manufacturers, we are deformed and rabid creatures that are part animal, part alien, and part degenerate. People buy these with a mind to having a good drunken laugh at my expense and that of everyone who shares my affliction or has another related condition such as schizophrenia, borderline disorder and even depression!
Because of this, we wear another kind of facial covering — invisibility. Coupled with this is Silence. We do not talk about our illness much with outsiders — which can include our members of our own family — it is much too dangerous. You deny us jobs, decent housing, and even friendship because you fear an imaginary ax murderer lurking inside our skins.
Another Hockey Mask: Andreas Lubitz
*TRIGGER WARNING*
I must tell the truth here: I do not understand what Andreas Lubitz did. In my suicidal fugues, I thought of many ways that I might kill myself that involved others such as throwing myself in front of a truck or crashing my car into a tree or driving it off a cliff, but the idea of taking others with me — that wasn’t the self-annihilation that I planned. When I came close,I found a secluded place where someone would eventually find me. That was the maximum involvement of another that I planned. Though I thought capital punishment might work for me — and send a message to those who loved me — I did not want to assassinate others.
>Rumor has it that Lubitz was going through some catastrophic issues with his girlfriend. He knew that he was ill and he was seeking treatment for it. The day of the crash, his psychiatrist issued a sick leave note. Andreas did not use it, however, and his doctor could not call the airline to tell them that he was at risk. But Lubitz did not stop at ending his own life:
The InterNet Argument Addict
Difficult to end when I am feeling stable but energized and impossible when I am manic, InterNet disputes are a drug of choice for me. I just ended an exchange that went on for over an hour with someone on Facebook. She would not stop and neither would I. It seemed to me that no matter what I said to refute her, she kept repeating the same thing over and over. My ire was up: I had a defense to make and, equally important, someone to skewer. Then in the middle of it, I realized that I had become a Facebook Mr. Hyde, shared one last anecdote, and announced the end of my participation. Others have responded to the thread since then and I have not read what they said. Whether they indict me or stand up for me, I shall not involve myself anymore.
Long ago — on the abUSENET, I learned that it was a waste of time arguing against the trolls and cranks of the Net. If I spent a long time preparing an intelligent rebuttal to something they said, they’d dismiss it with a brute-force remark or lame witticism. Some even went so far as to create robots that would repeat the same argument every time certain key words appeared anywhere in the newsgroups. You could easily exhaust yourself fighting these. I gave it up for the Web because I realized that the newsgroups were a waste of time.
Bipolar Disorder in a Time of Hate
Shortly before my hospitalization for a mixed state came the 2004 election. I crashed and crashed hard after the results. Politics is a fascination of mine but obsessing about it is not my friend. When my expectations are high as they were in 2004 and the hope I feel is unrealized, I take it very hard. The mix of anger and disappointment plus certain medications I was taking for depression at the time pumped me up into a mixed state. One day, when I had enough of it and of other life issues, I texted my last will and testament to my wife and sat down on a log to study my veins for the right place to cut. A timely phone call from my psychiatrist saved me.
The 2004 election was cordial compared to what has happened since 2008. Elements on both side but especially the right have been whipped into a frenzy by their respective leaders. We hear stories of blatant racism and sexism, two faults that have been hidden until the recent elections. We see them not only in the political arena but also in the news media and on the streets of our cities. Some such as Fox News are instigating their viewers to greater and greater heights of denial and fear while others just give the demagogues air time by covering them without comment. We see black men strangled or shot dead with no justice leveled against their killers. And respect for the police — even the good cops — sinks lower and lower.
The Medical Marijuana for Bipolar Lie
Everyone seems to have a friend who has been helped by medical marijuana. When my wife had chemotherapy, we had it as a backup in case the anti-nausea drugs did not work for her. Glaucoma is a disease with medical research proving the effectiveness of medical marijuana. But the medical marijuana industry goes beyond what is proven by science. It welcomes those who use it for many other diagnoses despite the absence of peer review studies. In other words, if you can get a doctor or a nurse practitioner to write you a script, you can get high legally for any disease you can name. And the worst of the lies medical marijuana prescribers and retailers let fly is the lie that marijuana helps the symptoms of bipolar disorder.
Here is my full disclosure: First, I do not oppose legalization of marijuana provided it is regulated at least as well as alcohol. There need to be laws governing its sale to minors, bans against driving under the influence, etc. But other than that, I have no problem with seeing it available as a leisure drug. There’s considerable evidence that the liquor industry does not want this, but alcohol is worse than cannabis in some regards. Second, I have smoked marijuana. Here is where my strong feelings about the subject come from. When I was in college, I was talked into toking by my peers. They did not force it down my throat, they did not blow smoke into my lungs, they did not deceive me in the sense that they told me things that they knew were not true. I started using the drug by my own choice.
