A Letter to My Illness

You moved in when I was very young, shoved me into your corner, made me cry and when I cried you caused the kids to laugh at me, taunt me saying “Don’t cry Joel.” Sister Annette told me to buck up, to learn to be a man and hold the tears back. Damn you and damn her. I couldn’t say it at the time. Two years of living under the threat of her ruler, but the taunts were worse, hurt worse. The more they called me names, you and my parents reasoned, the stronger I would become but this practice was flawed. I played alone or with other losers. My mother criticized my choice of friends, calling them slow, hinting that they were retarded. Even among them I lived in a shell and the kids continued to wear at my head, trying to produce the streams of salt water they loved so much to see. I don’t know what brought you to make a home in my head. I don’t know why you made me sensitive to the twist in their voices. Was it the arrival of my two cousins who stayed for a year? If it was, you stayed beyond a year, brought me suffering. I looked at Jesus and wondered what was worse: crucifixion or this hell I was going through? If I was on the cross with Him, it was an absurdity.

Marya Hornbacher Again

A few weeks ago, I took a survey by Marya Hornbacher, author of Madness: A Bipolar Life, which probed my feelings about mental illness. She has written back with more questions. Here they are with my answers:

Do you consider mental illness a chronic physical disease? Please explain your response.

There’s no other explanation for it. I have tried willing myself into better moods or trying to stop my impulsiveness, but they were just too massive a problem for mere force of mind. It was like trying to prevent my cold from generating mucous or insisting that my pancreas produce more insulin. I tried, believe me, I tried to stop the tidal wave of emotions that consumed me but they kept rolling over me and I drowned. When I stopped seeing it as a character flaw and began treating it as a disease of my brain, I got on medications. While my nasty habits didn’t vanish overnight, the moods that drove them achieved a halcyon state in which I was not thwarted in my efforts to change. Just as my heart medications lowered my blood pressure, so, too, my mood stabilizers calmed me.

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The Disease Didn’t Do It — You Did

Many people in bipolar support groups counsel the newly diagnosed not to feel shame for things they did while they were in episode: it was the disease that did it, not them is the reasoning. This cleaving of the self, I think, does not help us get a handle on the illness and its effects on others in our life. In fact, it strikes me as downright irresponsible: you never have to make amends for anything you did.

Denial of the damage we cause is linked to this exculpation due to mania. Some say that making amends has nothing to do with apologizing. Warped logic causes it to mean nothing more than admitting to yourself what you did without making restitution or apology to those we harmed while addicted or in the throes of mental illness. I find this cheap recovery and I am suspicious of anyone who flaunts it.
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